@Article{info:doi/10.2196/resprot.8054,
author="van Diemen, Tijn
and Scholten, Eline WM
and van Nes, Ilse JW
and Geertzen, Jan HB
and Post, Marcel WM",
title="Self-Management and Self-Efficacy in Patients With Acute Spinal Cord Injuries: Protocol for a Longitudinal Cohort Study",
journal="JMIR Res Protoc",
year="2018",
month="Feb",
day="26",
volume="7",
number="2",
pages="e68",
keywords="spinal cord injuries; self-care; self-efficacy; rehabilitation; complications; social participation",
abstract="Background: People with recently acquired spinal cord injury (SCI) experience changes in physical, social and psychological aspects of their lives. In the last decades, attention has grown for aspects of self-management and self-efficacy in SCI research. However, we still do not know what the self-management and self-efficacy outcomes of first rehabilitation are and whether utilizing these skills may prevent secondary health conditions (SHCs) and increase participation and psychological adjustment early after SCI. Objective: To describe the course and determinants of self-management and self-efficacy during and after first SCI rehabilitation; and to determine theory-based associations between self-management and self-efficacy with SHCs, participation and psychological adjustment. Methods: Multicenter prospective longitudinal cohort study. All people with a newly acquired SCI admitted to one of the 8 specialized SCI rehabilitation centers in the Netherlands will be considered for inclusion in this study. Main assessments will take place during the first and last week of admission and 3, 6 and 12 months after discharge. The target sample is 250 participants. The primary outcomes are self-management (knowledge and execution of self-care) and self-efficacy (confidence in the ability to manage the consequences of SCI and of self-care). Secondary outcome measures are SHCs, participation and psychological adjustment to SCI. Results: The first results with the complete set of data are expected in June 2019. Conclusions: This protocol describes the SELF-SCI cohort study investigating self-management and self-efficacy of initial inpatient SCI rehabilitation. Second, associations will be investigated with SHCs, participation and psychological adjustment early after onset of SCI, until 1 year after discharge. The results will be used to test theories about motivation to perform health-promoting behaviors and adjustment to SCI. ",
issn="1929-0748",
doi="10.2196/resprot.8054",
url="http://www.researchprotocols.org/2018/2/e68/",
url="https://doi.org/10.2196/resprot.8054",
url="http://www.ncbi.nlm.nih.gov/pubmed/29483066"
}