TY  - JOUR
AU  - van Diemen, Tijn
AU  - Scholten, Eline WM
AU  - van Nes, Ilse JW
AU  - Geertzen, Jan HB
AU  - Post, Marcel WM
PY  - 2018
DA  - 2018/02/26
TI  - Self-Management and Self-Efficacy in Patients With Acute Spinal Cord Injuries: Protocol for a Longitudinal Cohort Study
JO  - JMIR Res Protoc
SP  - e68
VL  - 7
IS  - 2
KW  - spinal cord injuries
KW  - self-care
KW  - self-efficacy
KW  - rehabilitation
KW  - complications
KW  - social participation
AB  - Background: People with recently acquired spinal cord injury (SCI) experience changes in physical, social and psychological aspects of their lives. In the last decades, attention has grown for aspects of self-management and self-efficacy in SCI research. However, we still do not know what the self-management and self-efficacy outcomes of first rehabilitation are and whether utilizing these skills may prevent secondary health conditions (SHCs) and increase participation and psychological adjustment early after SCI. Objective: To describe the course and determinants of self-management and self-efficacy during and after first SCI rehabilitation; and to determine theory-based associations between self-management and self-efficacy with SHCs, participation and psychological adjustment. Methods: Multicenter prospective longitudinal cohort study. All people with a newly acquired SCI admitted to one of the 8 specialized SCI rehabilitation centers in the Netherlands will be considered for inclusion in this study. Main assessments will take place during the first and last week of admission and 3, 6 and 12 months after discharge. The target sample is 250 participants. The primary outcomes are self-management (knowledge and execution of self-care) and self-efficacy (confidence in the ability to manage the consequences of SCI and of self-care). Secondary outcome measures are SHCs, participation and psychological adjustment to SCI. Results: The first results with the complete set of data are expected in June 2019. Conclusions: This protocol describes the SELF-SCI cohort study investigating self-management and self-efficacy of initial inpatient SCI rehabilitation. Second, associations will be investigated with SHCs, participation and psychological adjustment early after onset of SCI, until 1 year after discharge. The results will be used to test theories about motivation to perform health-promoting behaviors and adjustment to SCI. 
SN  - 1929-0748
UR  - http://www.researchprotocols.org/2018/2/e68/
UR  - https://doi.org/10.2196/resprot.8054
UR  - http://www.ncbi.nlm.nih.gov/pubmed/29483066
DO  - 10.2196/resprot.8054
ID  - info:doi/10.2196/resprot.8054
ER  -