Published on in Vol 3, No 1 (2014): Jan-Mar

Using the Internet to Seek Information About Genetic and Rare Diseases: A Case Study Comparing Data From 2006 and 2011

Using the Internet to Seek Information About Genetic and Rare Diseases: A Case Study Comparing Data From 2006 and 2011

Using the Internet to Seek Information About Genetic and Rare Diseases: A Case Study Comparing Data From 2006 and 2011

Tamandra Morgan   1 , ScM ;   Johanna Schmidt   2 , MPH ;   Christy Haakonsen   3 , ScM ;   Janine Lewis   1 , MS ;   Maria Della Rocca   1 , MS ;   Stephanie Morrison   1 , MPH ;   Barbara Biesecker   4 , MS, PhD ;   Kimberly A. Kaphingst   5 , ScD

1 ICF International, Rockville, MD, United States

2 Children's National Medical Center, Washington, DC, United States

3 The Harvey Institute for Human Genetics, Baltimore, MD, United States

4 National Human Genome Research Institute, Bethesda, MD, United States

5 Washington University School of Medicine, St Louis, MO, United States

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