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Decentralized Biobanking Apps for Patient Tracking of Biospecimen Research: Real-World Usability and Feasibility Study

Decentralized Biobanking Apps for Patient Tracking of Biospecimen Research: Real-World Usability and Feasibility Study

We examined all contexts along the data pipeline, from population-level breast cancer screening to diagnostic biopsies and surgical treatments, clinical pathology, and specimen accessioning through the biobanking platform, where it may be stored for future use in –80 °C freezers or distributed fresh for next-generation biobanking applications such as patient-derived organoids, multi-omics, and high-throughput testing.

William Sanchez, Ananya Dewan, Eve Budd, M Eifler, Robert C Miller, Jeffery Kahn, Mario Macis, Marielle Gross

JMIR Bioinform Biotech 2025;6:e70463

Conversion of Sensitive Data to the Observational Medical Outcomes Partnership Common Data Model: Protocol for the Development and Use of Carrot

Conversion of Sensitive Data to the Observational Medical Outcomes Partnership Common Data Model: Protocol for the Development and Use of Carrot

(C) The OMOP standardized deidentified dataset. OMOP: Observational Medical Outcomes Partnership. Each data partner remains responsible for the management of their data, including generating a pseudonymized and deidentified extract. There are some preprocessing steps that they must perform to use the tool, but we have minimized the workload on each data partner.

Samuel Cox, Erum Masood, Vasiliki Panagi, Calum Macdonald, Gordon Milligan, Scott Horban, Roberto Santos, Chris Hall, Daniel Lea, Simon Tarr, Shahzad Mumtaz, Emeka Akashili, Andy Rae, Esmond Urwin, Christian Cole, Aziz Sheikh, Emily Jefferson, Philip Roy Quinlan

JMIR Res Protoc 2025;14:e60917