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Ethical Design of Data-Driven Decision Support Tools for Improving Cancer Care: Embedded Ethics Review of the 4D PICTURE Project

Ethical Design of Data-Driven Decision Support Tools for Improving Cancer Care: Embedded Ethics Review of the 4D PICTURE Project

To improve cancer treatment decision-making by addressing existing challenges in DSTs, a large European collaboration was started—the 4 D PICTURE (Producing Improved Cancer Outcomes Through User-Centered Research) project [4]. Recognizing the complexity that patients face, the consortium seeks to use design methods (particularly the Metro Mapping methodology, Figure 1) to improve care paths in oncology.

Marieke Bak, Laura Hartman, Charlotte Graafland, Ida J Korfage, Alena Buyx, Maartje Schermer, 4D PICTURE Consortium

JMIR Cancer 2025;11:e65566

Bridging Data Gaps in Emergency Care: The NIGHTINGALE Project and the Future of AI in Mass Casualty Management

Bridging Data Gaps in Emergency Care: The NIGHTINGALE Project and the Future of AI in Mass Casualty Management

Of note, even when continuous monitoring occurs in the prehospital environment (eg, in mobile intensive care units), the data are typically not recorded or stored, as they are deemed unnecessary for immediate treatment decisions. The absence of such data, curated accordingly, hinders the ability to create accurate models and limits the potential for AI to improve emergency responses and outcomes.

The NIGHTINGALE Consortium, Marta Caviglia

J Med Internet Res 2025;27:e67318

Assessment of Environmental, Sociocultural, and Physiological Influences on Women’s Toileting Decisions and Behaviors Using “Where I Go”: Pilot Study of a Mobile App

Assessment of Environmental, Sociocultural, and Physiological Influences on Women’s Toileting Decisions and Behaviors Using “Where I Go”: Pilot Study of a Mobile App

Due to the difficulty in measuring real-world influences by diary, survey, or interview, scientific studies lack evidence for many hypothesized relationships between sociocultural and physical environment factors and onset or worsening of LUTS or deterioration of bladder health. To address this gap, the Prevention of Lower Urinary Tract Symptoms (PLUS) Research Consortium developed a smartphone app called “Where I Go.”

Abigail R Smith, Elizabeth R Mueller, Cora E Lewis, Alayne Markland, Caroline Smerdon, Ariana L Smith, Siobhan Sutcliffe, Jean F Wyman, Lisa Kane Low, Janis M Miller, The Prevention of Lower Urinary Tract Symptoms (PLUS) Research C

JMIR Mhealth Uhealth 2025;13:e56533

Health and Experiences During the COVID-19 Pandemic Among Children and Young People: Analysis of Free-Text Responses From the Children and Young People With Long COVID Study

Health and Experiences During the COVID-19 Pandemic Among Children and Young People: Analysis of Free-Text Responses From the Children and Young People With Long COVID Study

We aimed to analyze these responses to determine the most important topics and the main “sentiment” to understand the impact of the pandemic. To ensure that our findings were representative of the broader population of children and young people in England, we applied survey weights [22] to the sentiment analysis.

Natalia K Rojas, Sam Martin, Mario Cortina-Borja, Roz Shafran, Lana Fox-Smith, Terence Stephenson, Brian C F Ching, Anaïs d'Oelsnitz, Tom Norris, Yue Xu, Kelsey McOwat, Emma Dalrymple, Isobel Heyman, Tamsin Ford, Trudie Chalder, Ruth Simmons, CLoCk Consortium, Snehal M Pinto Pereira

J Med Internet Res 2025;27:e63634

Recruitment of Adolescents to Virtual Clinical Trials: Recruitment Results From the Health4Me Randomized Controlled Trial

Recruitment of Adolescents to Virtual Clinical Trials: Recruitment Results From the Health4Me Randomized Controlled Trial

The Health4 Me study was used as the context for this research. The full protocol is published elsewhere [25]. In brief, the Health4 Me Study is a virtual clinical trial, based in Australia, of a community-based, 6-month text message intervention. The intervention aims to improve physical activity and nutrition behaviors among adolescents aged 12 to 18 years.

Rebecca Raeside, Allyson R Todd, Sarah Barakat, Sean Rom, Stephanie Boulet, Sarah Maguire, Kathryn Williams, Seema Mihrshahi, Maree L Hackett, Julie Redfern, Stephanie R Partridge, The Health4Me Team, The Health4Me Team

JMIR Pediatr Parent 2024;7:e62919

An Ecological Momentary Assessment Approach of Environmental Triggers in the Role of Daily Affect, Rumination, and Movement Patterns in Early Alcohol Use Among Healthy Adolescents: Exploratory Study

An Ecological Momentary Assessment Approach of Environmental Triggers in the Role of Daily Affect, Rumination, and Movement Patterns in Early Alcohol Use Among Healthy Adolescents: Exploratory Study

Participants received a reimbursement of €50 (approximately US $58) for their participation in the entire study. For the present purpose, only the EMA was of interest, and 65 participants underwent the entire EMA assessment. Daily life experiences were assessed by an EMA. The implementation of the EMA was done by movisens XS (movisens Gmb H) [47], which allows the integration of relevant items and additional information like geospatial measures.

Maren Prignitz, Stella Guldner, Stephan Johann Lehmler, Pascal-M Aggensteiner, Frauke Nees, IMAC-Mind Consortium

JMIR Mhealth Uhealth 2024;12:e53401

Beyond Hemoglobin A1c—Outcomes That Matter to Individuals With Type 1 Diabetes in Adopting Digital Health Interventions for Self-Management Support: Qualitative Study

Beyond Hemoglobin A1c—Outcomes That Matter to Individuals With Type 1 Diabetes in Adopting Digital Health Interventions for Self-Management Support: Qualitative Study

The goal of the study was to understand the types of outcomes that were perceived as meaningful by a diverse sample of adults living with T1 D in Ontario, in the context of their usual care and self-management experiences. In order for the study to inform the trial’s design, we also needed to understand their education and support needs. In addition, we aimed to identify the aspects of a digital health care intervention that were important to individuals living with T1 D.

Benjamin Markowitz, Stephanie de Sequeira, Adhiyat Najam, Cheryl Pritlove, Dana Greenberg, Marley Greenberg, Chee-Mei Chan, Gurpreet Lakhanpal, Samyukta Jagadeesh, Geetha Mukerji, Rayzel Shulman, Holly O Witteman, Catherine H Yu, Gillian L Booth, Janet A Parsons, The T1ME Patient Advisory Committee

JMIR Diabetes 2024;9:e60190

Data Visualization Preferences in Remote Measurement Technology for Individuals Living With Depression, Epilepsy, and Multiple Sclerosis: Qualitative Study

Data Visualization Preferences in Remote Measurement Technology for Individuals Living With Depression, Epilepsy, and Multiple Sclerosis: Qualitative Study

The software NVivo (Lumivero) was used to help manage the data. Coding frame development process. This research was codeveloped with an advisory board of people with lived experience of either depression, epilepsy, or MS who were gathered together to advise on the following program of study. The advisory board had oversight of the themes in the coding frame and helped with the interpretation of results. Representatives of this board are coauthors who have critically reviewed this paper.

Sara Simblett, Erin Dawe-Lane, Gina Gilpin, Daniel Morris, Katie White, Sinan Erturk, Julie Devonshire, Simon Lees, Spyridon Zormpas, Ashley Polhemus, Gergely Temesi, Nicholas Cummins, Matthew Hotopf, Til Wykes, RADAR-CNS Consortium

J Med Internet Res 2024;26:e43954