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Digital Outcome Measurement to Improve Care for Patients With Immune-Mediated Inflammatory Diseases: Protocol for the IMID Registry

Digital Outcome Measurement to Improve Care for Patients With Immune-Mediated Inflammatory Diseases: Protocol for the IMID Registry

The IMID registry was developed to implement digital routine outcome measurements in daily practice (1) to improve individual patient care, including shared decision-making, (2) for research purposes, and (3) as a first step toward the implementation of VBHC in patients with an IMID.

Agnes E M Looijen, Reinier C A van Linschoten, Jan-Dietert Brugma, Dirk Jan Hijnen, Pascal H P de Jong, P Hugo M van der Kuy, Jan A M van Laar, C Janneke van der Woude, Annelieke Pasma

JMIR Res Protoc 2023;12:e43230

Information and Communication Technologies in Patients With Immune-Mediated Inflammatory Diseases: Cross-sectional Survey

Information and Communication Technologies in Patients With Immune-Mediated Inflammatory Diseases: Cross-sectional Survey

Immune-mediated inflammatory diseases (IMID) are a large group of chronic diseases of high prevalence and a high socio-health impact [1]. Patients with IMID are generally middle age, with diverse clinical manifestations, and reduced quality of life what makes its handling complex [2,3].

Esther Chamorro-de-Vega, Rosa Romero-Jiménez, Vicente Escudero-Vilaplana, Arantza Ais-Larisgoitia, María Elena Lobato Matilla, Carlos M González, Luis Menchén, Ofelia Baniandrés, Lucía Ibares-Frias, Carmen Lobo-Rodríguez, Ana Herranz-Alonso, María Sanjurjo

J Med Internet Res 2022;24(9):e37445