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Dexmedetomidine Versus Midazolam for End-of-Life Sedation and Agitation: Protocol for a Randomized Controlled Trial (The DREAMS Trial)

Dexmedetomidine Versus Midazolam for End-of-Life Sedation and Agitation: Protocol for a Randomized Controlled Trial (The DREAMS Trial)

Palliative care includes the holistic, person-, and family-centered care provided for patients with a life-limiting diagnosis where the primary goal is to optimize quality of life. At the end of life, patients may experience hardship from an array of distressing symptoms including pain, nausea, agitation, and distress, with up to 88% of patients admitted to a palliative care unit enduring terminal delirium [1].

Benjamin Thomas, Greg Barclay, Wing-Shan Angela Lo, Judy Mullan, Kylie Mansfield

JMIR Res Protoc 2024;13:e55129

Teaching Palliative Care to Emergency Medicine Residents Using Gamified Deliberate Practice-Based Simulation: Palliative Gaming Simulation Study

Teaching Palliative Care to Emergency Medicine Residents Using Gamified Deliberate Practice-Based Simulation: Palliative Gaming Simulation Study

Palliative care interventions in the ED capture high-risk patients at a time of crisis and can change the course of the disease, improving patient-centered outcomes [1]. These patients require skillful communication so that clinicians can tailor care to the patient’s values, goals, and preferences [2,3].

Jessica Stanich, Kharmene Sunga, Caitlin Loprinzi-Brauer, Alexander Ginsburg, Cory Ingram, Fernanda Bellolio, Daniel Cabrera

JMIR Med Educ 2023;9:e43710

Predicting Patient Mortality for Earlier Palliative Care Identification in Medicare Advantage Plans: Features of a Machine Learning Model

Predicting Patient Mortality for Earlier Palliative Care Identification in Medicare Advantage Plans: Features of a Machine Learning Model

One major cause of lower uptake involves unreliability in provider identification of patients who are appropriate for palliative care. Research shows a clinician’s intuition alone is not the most effective method for recognizing individuals in general practice who could benefit from palliative services [10-12].

Anne Bowers, Chelsea Drake, Alexi E Makarkin, Robert Monzyk, Biswajit Maity, Andrew Telle

JMIR AI 2023;2:e42253

Patient Perspectives on Value Dimensions of Lung Cancer Care: Cross-sectional Web-Based Survey

Patient Perspectives on Value Dimensions of Lung Cancer Care: Cross-sectional Web-Based Survey

With regards to treatment, 27% (40/150) stated that they were in remission, 32% (49/150) were under curative care, 11% (16/150) were under palliative care, and 30% (45/150) did not respond to this question. Caregivers were mostly women (33/35, 94%) and either a relative of a patient (32/35, 91%), such as their child (16/35, 45%), or their partner (14/35, 40%). They were mostly younger than 56 years (29/35, 83%). Overall, they represented between 9% (2/22; Germany) and 41% (15/37; France) of respondents.

Pasquale Varriale, Borna Müller, Grégory Katz, Lorraine Dallas, Alfonso Aguaron, Marion Azoulai, Nicolas Girard

JMIR Form Res 2023;7:e37190

Conceptions of Legacy Among People Making Treatment Choices for Serious Illness: Protocol for a Scoping Review

Conceptions of Legacy Among People Making Treatment Choices for Serious Illness: Protocol for a Scoping Review

Although actions concerning legacy may be taken at any timepoint along an illness experience, legacy work, when undertaken, is often incorporated into end-of-life care or palliative care, and such interventions have been shown to promote emotional and spiritual care of advanced cancer patients [1,5-8]. Based on a preliminary literature review and previous research [9], we are exploring the conceptual foundations of legacy. We conceptualize 3 types of legacy: primary, secondary, and tertiary.

Marlaine Figueroa Gray, Matthew P Banegas, Nora B Henrikson

JMIR Res Protoc 2022;11(12):e40791

Receipt of Curative Resection or Palliative Care for Hepatopancreaticobiliary Tumours (RICOCHET): Protocol for a Nationwide Collaborative Observational Study

Receipt of Curative Resection or Palliative Care for Hepatopancreaticobiliary Tumours (RICOCHET): Protocol for a Nationwide Collaborative Observational Study

In this paper, we describe the protocol of the Receipt of Curative Resection or Palliative Care for Hepatopancreaticobiliary Tumours (RICOCHET) study. This prospective study aims to define variations in diagnostic and management pathways for patients with suspected HPB malignancies, determine factors associated with these variations, and test the hypothesis that these variations have an impact on patient outcomes.

The RICOCHET Study Group, West Midlands Research Collaborative

JMIR Res Protoc 2019;8(7):e13566