e.g. mhealth
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Resiliency is associated with the achievement of life satisfaction, positive well-being, competent functioning, and improved quality of life after experiencing stressors or adversity [9]. Therefore, fostering resilient behaviors in DSPs as well as their neurodivergent clients is critical to strengthening and empowering neurodivergent individuals and creating more inclusive neurodiverse communities.
JMIR Res Protoc 2025;14:e59913
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Delivery of resiliency practices is traditionally done during in-person training. However, m Health delivery of resiliency practices is another option that is effective in many areas including improving mental health and reducing BO in health care professionals [21].
JMIR Nursing 2024;7:e54561
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With funding from the National Cancer Institute (NCI), we adapted Bounce Back from an existing evidence-based resiliency program, the Stress Management and Relaxation Training - Relaxation Response Resiliency Program (SMART-3 RP) [27]. Our program adaptation was informed by a series of qualitative focus groups with AYAs and open pilot testing for program refinement.
JMIR Res Protoc 2022;11(1):e34033
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Our team at Massachusetts General Hospital used mixed methods approaches to adapt an evidence-based mind–body program for the specific needs of adults with NF (Relaxation Response Resiliency Program for Neurofibromatosis [3 RP-NF]; NF1, NF2, or schwannomatosis) [3], adolescents with NF (Resilient Youth with NF) [5], and adults with NF2 who are deaf (Relaxation Response Resiliency Program for NF2) [6] for virtual delivery to bypass these barriers to care.
JMIR Res Protoc 2021;10(6):e27526
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Moreover, we showed that participation in 3 RP-NF resulted in greater sustained improvement in Qo L, psychosocial functioning [11], and resiliency variables [13] compared with an active control program (the Health Enhancement Program for Neurofibromatosis [HEP-NF]) [14], which was also delivered via videoconferencing using a group format.
We are now conducting the first fully powered efficacy RCT in adults with NF (N=224).
JMIR Res Protoc 2018;7(10):e11008
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