JMIR Research Protocols

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Toward Personalized Care and Patient Empowerment and Perspectives on a Personal Health Record in Hemophilia Care: Qualitative Interview Study

Persons with a chronic health condition, such as the bleeding disorder hemophilia, are encouraged to use e Health tools to enable personalized treatment and shared decision-making. Hemophilia is an X-linked inherited coagulation factor deficiency of factor VIII (in hemophilia A) or factor IX (in hemophilia B), resulting in an increased bleeding tendency.

Martijn R Brands, Lotte Haverman, Jelmer J Muis, Mariëtte H E Driessens, Stephan Meijer, Felix J M van der Meer, Marianne de Jong, Johanna G van der Bom, Marjon H Cnossen, Karin Fijnvandraat, Samantha C Gouw

JMIR Hum Factors 2024;11:e48359

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Shared Decision-Making for Drug-Drug Interactions: Formative Evaluation of an Anticoagulant Drug Interaction

To improve health outcomes, stakeholders have advocated for the incorporation of shared decision-making (SDM) that encourages physicians to involve patients in selecting therapeutic treatments, among others [11]. SDM improves patient behavior and results in higher adherence to physician guidance, leading to improved health outcomes [12,13]. Currently, there are SDM tools available to facilitate decisions regarding nonvalvular atrial fibrillation anticoagulant treatment [14-18].

Ainhoa Gomez Lumbreras, Thomas J Reese, Guilherme Del Fiol, Malinda S Tan, Jorie M Butler, Jason T Hurwitz, Mary Brown, Kensaku Kawamoto, Henrik Thiess, Maria Wright, Daniel C Malone

JMIR Form Res 2022;6(10):e40018

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Interventions, Participative Role, Barriers, and Facilitators for Involvement in eHealth Communication for People Undergoing Hemodialysis: Protocol for a Scoping Review

Thompson [14] has described patient participation as covering five levels of patient-determined participation or involvement: noninvolvement, given information, dialogue, shared decision-making, and autonomous decision-making. Thompson [14] conceived of professionally determined patient involvement as being along a power continuum from a low level of patient power (exclusion) to a high level of patient power (informed decision-making) in patient consultations.

Anne Deinboll, Cathrine Fredriksen Moe, Mette Spliid Ludvigsen

JMIR Res Protoc 2022;11(7):e38615

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Effectiveness of Individual Feedback and Coaching on Shared Decision-making Consultations in Oncology Care: Protocol for a Randomized Clinical Trial

Shared decision-making (SDM) has been promoted to support patients in making informed decisions that best fit their personal preferences, circumstances, and concerns [1,2]. This is particularly important in oncology as many treatments involve serious side effects, and treatment decisions involve a trade-off between benefits and risks [3,4]. Approximately 110,000 Dutch patients are diagnosed with cancer each year [5].

Haske van Veenendaal, Loes J Peters, Dirk T Ubbink, Fabienne E Stubenrouch, Anne M Stiggelbout, Paul LP Brand, Gerard Vreugdenhil, Carina GJM Hilders

JMIR Res Protoc 2022;11(4):e35543

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Use and Effects of Patient Access to Medical Records in General Practice Through a Personal Health Record in the Netherlands: Protocol for a Mixed-Methods Study

We included medication adherence because this is related to the knowledge about the condition and treatment and shared decision making and may be facilitated by having an overview of the medication list [42,43]. The secondary outcomes are patient-reported changes in use of GP services (number and type of contacts), patients’ confidence in their communication with the GP, knowledge about the disease, satisfaction with GP care, and patient-reported perception of changes in the doctor-patient relationship.

Maria MT Maria Margaretha Vreugdenhil, Rudolf B Kool, Kees van Boven, Willem JJ Assendelft, Jan AM Kremer

JMIR Res Protoc 2018;7(9):e10193

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Deciding How to Stay Independent at Home in Later Years: Development and Acceptability Testing of an Informative Web-Based Module

According to the Ottawa Decision Support Framework, people cannot make preference-based shared decisions without accurate knowledge of the options, an understanding of what is most important to them, and effective support from others [15]. In the decision to stay at home or relocate, different kinds of knowledge (eg, medical, social, financial, and familial) are needed and supplied by different stakeholders.

Mirjam Marjolein Marjolein Garvelink, C Allyson Jones, Patrick M Archambault, Noémie Roy, Louisa Blair, France Légaré

JMIR Hum Factors 2017;4(4):e32

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An Observational Study to Evaluate the Usability and Intent to Adopt an Artificial Intelligence–Powered Medication Reconciliation Tool

During the shared-screen review process, the clinicians can answer patient's questions about each medication and provide an opportunity to adjust certain medications to address patient concerns such as cost and side effects. The app allows the front desk administrator to load a list of currently scheduled patients on the screen.

Ju Long, Michael Juntao Yuan, Robina Poonawala

Interact J Med Res 2016;5(2):e14

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