This paper is in the following e-collection/theme issue:

Methods and Feasibility Studies (380)

Published on in Vol 3, No 4 (2014): Oct-Dec

Development of a Communication Protocol for Telephone Disclosure of Genetic Test Results for Cancer Predisposition

Development of a Communication Protocol for Telephone Disclosure of Genetic Test Results for Cancer Predisposition

Development of a Communication Protocol for Telephone Disclosure of Genetic Test Results for Cancer Predisposition

Authors of this article:

Linda J Patrick-Miller1 Author Orcid Image ;   Brian L Egleston2 Author Orcid Image ;   Dominique Fetzer3 Author Orcid Image ;   Andrea Forman4 Author Orcid Image ;   Lisa Bealin4 Author Orcid Image ;   Christina Rybak4 Author Orcid Image ;   Candace Peterson4 Author Orcid Image ;   Melanie Corbman4 Author Orcid Image ;   Julio Albarracin3 Author Orcid Image ;   Evelyn Stevens3 Author Orcid Image ;   Mary B Daly4 Author Orcid Image ;   Angela R Bradbury5 Author Orcid Image
Article Authors Cited by (20) Tweetations (12) Metrics

Journals

  1. Cohen S, Bradbury A, Henderson V, Hoskins K, Bednar E, Arun B. Genetic Counseling and Testing in a Community Setting: Quality, Access, and Efficiency. American Society of Clinical Oncology Educational Book 2019;(39):e34 View
  2. Bradbury A, Patrick-Miller L, Harris D, Stevens E, Egleston B, Smith K, Mueller R, Brandt A, Stopfer J, Rauch S, Forman A, Kim R, Fetzer D, Fleisher L, Daly M, Domchek S. Utilizing Remote Real-Time Videoconferencing to Expand Access to Cancer Genetic Services in Community Practices: A Multicenter Feasibility Study. Journal of Medical Internet Research 2016;18(2):e23 View
  3. Bradbury A, Patrick-Miller L, Egleston B, Maxwell K, DiGiovanni L, Brower J, Fetzer D, Gaieski J, Brandt A, McKenna D, Long J, Powers J, Stopfer J, Nathanson K, Domchek S. Returning Individual Genetic Research Results to Research Participants: Uptake and Outcomes Among Patients With Breast Cancer. JCO Precision Oncology 2018;(2):1 View
  4. Beri N, Patrick‐Miller L, Egleston B, Hall M, Domchek S, Daly M, Ganschow P, Grana G, Olopade O, Fetzer D, Brandt A, Chambers R, Clark D, Forman A, Gaber R, Gulden C, Horte J, Long J, Lucas T, Madaan S, Mattie K, McKenna D, Montgomery S, Nielsen S, Powers J, Rainey K, Rybak C, Savage M, Seelaus C, Stoll J, Stopfer J, Yao X, Bradbury A. Preferences for in‐person disclosure: Patients declining telephone disclosure characteristics and outcomes in the multicenter Communication Of GENetic Test Results by Telephone study. Clinical Genetics 2019;95(2):293 View
  5. Bradbury A, Patrick-Miller L, Egleston B, Hall M, Domchek S, Daly M, Ganschow P, Grana G, Olopade O, Fetzer D, Brandt A, Chambers R, Clark D, Forman A, Gaber R, Gulden C, Horte J, Long J, Lucas T, Madaan S, Mattie K, McKenna D, Montgomery S, Nielsen S, Powers J, Rainey K, Rybak C, Savage M, Seelaus C, Stoll J, Stopfer J, Yao X. Randomized Noninferiority Trial of Telephone vs In-Person Disclosure of Germline Cancer Genetic Test Results. JNCI: Journal of the National Cancer Institute 2018;110(9):985 View
  6. Zawahreh A, Rankin J, Abu Jaber A, Nashwan A. What Are the Challenges and Facilitators for Implementing a 24-Hour Telephone Cancer Service in Qatar? A Literature Review. Telemedicine and e-Health 2019;25(8):678 View
  7. Hall M, Patrick-Miller L, Egleston B, Domchek S, Daly M, Ganschow P, Grana G, Olopade O, Fetzer D, Brandt A, Chambers R, Clark D, Forman A, Gaber R, Gulden C, Horte J, Long J, Lucas T, Madaan S, Mattie K, McKenna D, Montgomery S, Nielsen S, Powers J, Rainey K, Rybak C, Savage M, Seelaus C, Stoll J, Stopfer J, Yao X, Bradbury A. Use and Patient-Reported Outcomes of Clinical Multigene Panel Testing for Cancer Susceptibility in the Multicenter Communication of Genetic Test Results by Telephone Study. JCO Precision Oncology 2018;(2):1 View
  8. King E, Mahon S. Genetic Testing: Challenges and Changes in Testing for Hereditary Cancer Syndromes. Clinical Journal of Oncology Nursing 2017;21(5):589 View
  9. Bradbury A, Egleston B, Patrick‐Miller L, Rustgi N, Brandt A, Brower J, DiGiovanni L, Fetzer D, Berkelbach C, Long J, Powers J, Stopfer J, Domchek S. Longitudinal outcomes with cancer multigene panel testing in previously testedBRCA1/2negative patients. Clinical Genetics 2020;97(4):601 View
  10. Bradbury A, Patrick-Miller L, Egleston B, DiGiovanni L, Brower J, Harris D, Stevens E, Maxwell K, Kulkarni A, Chavez T, Brandt A, Long J, Powers J, Stopfer J, Nathanson K, Domchek S. Patient feedback and early outcome data with a novel tiered-binned model for multiplex breast cancer susceptibility testing. Genetics in Medicine 2016;18(1):25 View
  11. Kilbride M, Egleston B, Hall M, Patrick-Miller L, Daly M, Ganschow P, Grana G, Olopade O, Fetzer D, Brandt A, Chambers R, Clark D, Forman A, Gaber R, Gulden C, Horte J, Long J, Lucas T, Madaan S, Mattie K, McKenna D, Montgomery S, Nielsen S, Powers J, Rainey K, Rybak C, Savage M, Seelaus C, Stoll J, Stopfer J, Yao X, Domchek S, Bradbury A. Longitudinal follow-up after telephone disclosure in the randomized COGENT study. Genetics in Medicine 2020;22(8):1401 View
  12. Danylchuk N, Cook L, Shane‐Carson K, Cacioppo C, Hardy M, Nusbaum R, Steelman S, Malinowski J. Telehealth for genetic counseling: A systematic evidence review. Journal of Genetic Counseling 2021;30(5):1361 View
  13. Kilbride M, Egleston B, Chung W, Olopade O, Maxwell K, Shah P, Churpek J, Fleisher L, Terry M, Fetzer D, Gaieski J, Bulafka J, Espinal A, Karpink K, Walser S, Singleton D, Palese M, Siljander I, Brandt A, Clark D, Koval C, Wynn J, Long J, McKenna D, Powers J, Nielsen S, Domchek S, Nathanson K, Bradbury A. Uptake of Genetic Research Results and Patient-Reported Outcomes With Return of Results Incorporating Web-Based Predisclosure Education. Journal of Clinical Oncology 2023;41(31):4905 View
  14. Wang C, Bertrand K, Trevino-Talbot M, Flynn M, Ruderman M, Cabral H, Bowen D, Hughes-Halbert C, Palmer J. Ethical, legal, and social implications (ELSI) and challenges in the design of a randomized controlled trial to test the online return of cancer genetic research results to U.S. Black women. Contemporary Clinical Trials 2023;132:107309 View
  15. Peshkin B, Kelly S, Nusbaum R, Similuk M, DeMarco T, Hooker G, Valdimarsdottir H, Forman A, Joines J, Davis C, McCormick S, McKinnon W, Graves K, Isaacs C, Garber J, Wood M, Jandorf L, Schwartz M. Patient Perceptions of Telephone vs. In‐Person BRCA1/BRCA2 Genetic Counseling. Journal of Genetic Counseling 2016;25(3):472 View
  16. Fenton G, Smit A, Freeman L, Badcock C, Dunlop K, Butow P, Kirk J, Cust A. Development and Evaluation of a Telephone Communication Protocol for the Delivery of Personalized Melanoma Genomic Risk to the General Population. Journal of Genetic Counseling 2018;27(2):370 View
  17. Chu A, Chung C, Hue S, Chung B. The growing needs of genetic counselling—Feasibility in utilization of tele-genetic counselling in Asia and Hong Kong. Frontiers in Genetics 2023;14 View
  18. Cacioppo C, Kessler L, Valverde K. Incorporating telehealth education into the genetic counseling curriculum. Journal of Genetic Counseling 2023;32(6):1217 View
  19. Henderson T, Allen M, Mim R, Egleston B, Fleisher L, Elkin E, Oeffinger K, Krull K, Ofidis D, Mcleod B, Griffin H, Wood E, Cacioppo C, Weinberg M, Brown S, Howe S, McDonald A, Vukadinovich C, Alston S, Rinehart D, Armstrong G, Bradbury A. The ENGAGE study: a 3-arm randomized hybrid type 1 effectiveness and implementation study of an in-home, collaborative PCP model of remote telegenetic services to increase uptake of cancer genetic services in childhood cancer survivors. BMC Health Services Research 2024;24(1) View

Books/Policy Documents

  1. Hesse B, Arora N, Klein W. Oncology Informatics. View