This paper is in the following e-collection/theme issue:

Grant Proposals (eHealth, funded) (80) Non-randomized Protocols and Methods (ehealth) (568)

Published on in Vol 6, No 4 (2017): April

Engaging Patients and Caregivers Managing Rare Diseases to Improve the Methods of Clinical Guideline Development: A Research Protocol

Engaging Patients and Caregivers Managing Rare Diseases to Improve the Methods of Clinical Guideline Development: A Research Protocol

Engaging Patients and Caregivers Managing Rare Diseases to Improve the Methods of Clinical Guideline Development: A Research Protocol

Authors of this article:

Dmitry Khodyakov1 Author Orcid Image ;   Kathi Kinnett2 Author Orcid Image ;   Sean Grant1 Author Orcid Image ;   Ann Lucas2 Author Orcid Image ;   Ann Martin2 Author Orcid Image ;   Brian Denger2 Author Orcid Image ;   Holly Peay3 Author Orcid Image ;   Ian Coulter4 Author Orcid Image ;   Arlene Fink5 Author Orcid Image
Article Authors Cited by (13) Tweetations (21) Metrics

Dmitry Khodyakov   1 , PhD ;   Kathi Kinnett   2 , MSN, CNP ;   Sean Grant   1 , DPhil ;   Ann Lucas   2 , MS ;   Ann Martin   2 , MS ;   Brian Denger   2 ;   Holly Peay   3 , PhD ;   Ian Coulter   4 , PhD ;   Arlene Fink   5 , PhD

1 RAND Health, Santa Monica, CA, United States

2 Parent Project Muscular Dystrophy, Hackensack, NJ, United States

3 RTI International, Research Triangle Park, NC, United States

4 RAND, Santa Monica, CA, United States

5 University of California Los Angeles, Los Angeles, CA, United States

Corresponding Author: