This paper is in the following e-collection/theme issue:

Non-randomized Protocols and Methods (ehealth) (572)

Published on in Vol 7, No 11 (2018): November

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/10939, first published .
User Perspectives of a Web-Based Data-Sharing Platform (Open Humans) on Ethical Oversight in Participant-Led Research: Protocol for a Quantitative Study

User Perspectives of a Web-Based Data-Sharing Platform (Open Humans) on Ethical Oversight in Participant-Led Research: Protocol for a Quantitative Study

User Perspectives of a Web-Based Data-Sharing Platform (Open Humans) on Ethical Oversight in Participant-Led Research: Protocol for a Quantitative Study

Authors of this article:

Marta Fadda1 Author Orcid Image ;   Anna Jobin1 Author Orcid Image ;   Alessandro Blasimme1 Author Orcid Image ;   Bastian Greshake Tzovaras2, 3 Author Orcid Image ;   Mad Price Ball2 Author Orcid Image ;   Effy Vayena1 Author Orcid Image
Article Authors Cited by (1) Tweetations (9) Metrics

Marta Fadda   1 , PhD ;   Anna Jobin   1 , MA ;   Alessandro Blasimme   1 , PhD ;   Bastian Greshake Tzovaras   2, 3 , PhD ;   Mad Price Ball   2 , PhD ;   Effy Vayena   1 , PhD

1 Health Ethics and Policy Lab, Department of Health Sciences and Technology, ETH Zurich, Zurich, Switzerland

2 Open Humans Foundation, Boston, MA, United States

3 Division of Environmental Genomics and Systems Biology, Lawrence Berkeley National Laboratory, Berkeley, CA, United States

Corresponding Author:

  • Effy Vayena, PhD
  • Health Ethics and Policy Lab
  • Department of Health Sciences and Technology
  • ETH Zurich
  • Auf der Mauer 17
  • Zurich, 8092
  • Switzerland
  • Phone: 41 446328301
  • Email: effy.vayena@hest.ethz.ch