Published on in Vol 7, No 9 (2018): September
1 Center for Health Economics Research Hannover, Department of Insurance, Leibniz University of Hanover, Hannover, Germany
2 Clinical Cancer Registry of Lower Saxony, Hannover, Germany
3 Medical Informatics Group, University Hospital Frankfurt, Frankfurt, Germany
4 Centre for Quality and Management in Healthcare, Medical Association of Lower Saxony, Hannover, Germany
5 Department of Dermatology, Medical University Center of Freiburg, Freiburg, Germany
6 Institute of Human Genetics, Orphanet Deutschland, Hannover Medical School, Hannover, Germany
7 German Alliance of Chronic Rare Diseases, Berlin, Germany
8 Frankfurt Center for Rare Diseases, University Hospital Frankfurt, Frankfurt, Germany