Quality of Life of Patients With Osteosarcoma in the European American Osteosarcoma Study-1 (EURAMOS-1): Development and Implementation of a Questionnaire Substudy

Gabriele Calaminus   ¹ , MD ;   Meriel Jenney   ² , MD ;   Lars Hjorth   ³ , MD ;   Katja Baust   ¹ , DPsych ;   Mark Bernstein   ⁴ , MD ;   Stefan Bielack   ⁵ , MD ;   Patricia De Vos   ⁶ , MSc ;   Pancras C W Hogendoorn   ⁷ , MD, PhD ;   Gordana Jovic   ⁸ , PhD ;   Mark Krailo   ^{9, 10} , PhD ;   Kiana Kreitz   ¹¹ , MSc ;   Neyssa Marina   ¹² , MS, MD ;   Babasola O Popoola   ⁸ , MSc ;   Cristina Sauerland   ¹¹ , DMath ;   Sigbjørn Smeland   ^{13, 14} , MD, PhD ;   Carmen Teske   ¹ ;   Clara V Schweinitz   ¹ , MSc ;   Jeremy Whelan   ¹⁵ , MD, MBBS, FRCP ;   Andreas Wiener   ¹⁶ , DPsych ;   Matthew R Sydes   ⁸ , MSc ;   Rajaram Nagarajan   ^{17, 18} , MS, MD

¹ Department of Pediatric Hematology and Oncology, University Hospital Bonn, Bonn, Germany

² Children & Women's Services Clinical Board, University Hospital of Wales, Cardiff, United Kingdom

³ Pediatrics, Department of Clinical Sciences Lund, Skane University Hospital, Lund University, Lund, Sweden

⁴ IWK Health Centre, Dalhousie University, Halifax, NS, Canada

⁵ Cooperative Osteosarcoma Study Group, Klinikum Stuttgart - Olgahospital, Stuttgart, Germany

⁶ Department of Pediatric Hematology and Oncology, Gent University Hospital, Gent, Belgium

⁷ Department of Pathology, Leiden University Medical Center, Leiden, Netherlands

⁸ MRC Clinical Trials Unit at UCL, Institute of Clinical Trials and Methodology, University College London, London, United Kingdom

⁹ Department of Preventive Medicine, Keck Medical Center at the University of Southern California, Los Angeles, CA, United States

¹⁰ Children's Oncolgy Group, Arcadia, CA, United States

¹¹ Institute of Biostatistics and Clinical Research, University of Muenster, Muenster, Germany

¹² Five Prime Therapeutics Inc, South San Francisco, CA, United States

¹³ Division of Cancer Medicine and Scandinavian Sarcoma Group, Oslo University Hospital, Oslo, Norway

¹⁴ Institute for Clinical Medicine, University of Oslo, Oslo, Norway

¹⁵ Department of Oncology, University College Hospital, London, United Kingdom

¹⁶ West German Proton Therapy Centre Essen, Essen, Germany

¹⁷ Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, United States

¹⁸ Division of Oncology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States