Mapping, Infrastructure, and Data Analysis for the Brazilian Network of Rare Diseases: Protocol for the RARASnet Observational Cohort Study

Domingos Alves   ^{1 *} , PhD ;   Diego Bettiol Yamada   ^{2 *} , BSc ;   Filipe Andrade Bernardi   ^{3, 4 *} , MSc ;   Isabelle Carvalho   ^{5 *} , PhD ;   Márcio Eloi Colombo Filho   ^{3 *} , MSc ;   Mariane Barros Neiva   ^{5 *} , MSc ;   Vinícius Costa Lima   ^{3, 4 *} , BSc ;   Têmis Maria Félix   ^{6 *} , PhD

¹ Department of Social Medicine, Ribeirão Preto Medical School, University of São Paulo, Ribeirão Preto, Brazil

² Public Health Postgraduate Program, Ribeirão Preto Medical School, University of São Paulo, Ribeirão Preto, Brazil

³ Bioengineering Postgraduate Program, School of Engineering, University of São Paulo, São Carlos, Brazil

⁴ Ribeirão Preto Medical School, University of São Paulo, Ribeirão Preto, Brazil

⁵ Institute of Mathematics and Computer Sciences, University of São Paulo, São Carlos, Brazil

⁶ Medical Genetics Service, Porto Alegre Clinical Hospital, Porto Alegre, Brazil

*all authors contributed equally