Published on in Vol 10, No 6 (2021): June

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/24901, first published .
Assessing Health-Related Quality of Life, Morbidity, and Survival Status for Individuals With Down Syndrome in Pakistan (DS-Pak): Protocol for a Web-Based Collaborative Registry

Assessing Health-Related Quality of Life, Morbidity, and Survival Status for Individuals With Down Syndrome in Pakistan (DS-Pak): Protocol for a Web-Based Collaborative Registry

Assessing Health-Related Quality of Life, Morbidity, and Survival Status for Individuals With Down Syndrome in Pakistan (DS-Pak): Protocol for a Web-Based Collaborative Registry

Ayat Siddiqui 1*, MBBS;  Laila Akbar Ladak 1, 2*, BScN, MScN, PhD, RN;  Abdul Momin Kazi 1, MPH;  Sidra Kaleem 1, MBBS;  Fizza Akbar 1, MSc;  Salman Kirmani 1, MBBS

1 Department of Pediatrics, Aga Khan University Hospital , Karachi , PK

2 Faculty of Medicine and Health, Susan Wakil School of Nursing and Midwifery, Sydney Nursing School, The University of Sydney, Sydney , AU

*these authors contributed equally

Corresponding Author:

  • Laila Akbar Ladak, BScN, MScN, PhD, RN
  • Department of Pediatrics
  • Aga Khan University Hospital
  • National Stadium Rd
  • Karachi
  • PK
  • Phone: 92 34930051
  • Email: laila.ladak@aku.edu