Sickle Cell Transplantation Evaluation of Long-term and Late Effects Registry (STELLAR) to Compare Long-term Outcomes After Hematopoietic Cell Transplantation to Those in Siblings Without Sickle Cell Disease and in Nontransplanted Individuals With Sickle Cell Disease: Design and Feasibility Study

Lakshmanan Krishnamurti   ¹ , MD ;   Staci D Arnold   ¹ , MD, MPH, MBA ;   Ann Haight   ¹ , MD ;   Allistair Abraham   ² , MD ;   Gregory MT Guilcher   ³ , MD ;   Tami John   ⁴ , MD ;   Nitya Bakshi   ¹ , MBBS, MS ;   Shalini Shenoy   ⁵ , MD ;   Karen Syrjala   ⁶ , PhD ;   Paul L Martin   ⁷ , MD, PhD ;   Sonali Chaudhury   ⁸ , MD ;   Gretchen Eames   ⁹ , MD ;   Olusola Festus Olowoselu   ¹⁰ , MD ;   Matthew Hsieh   ¹¹ , MD ;   Josu De La Fuente   ¹² , PhD ;   Kimberly A Kasow   ¹³ , DO ;   Elizabeth Stenger   ¹ , MD, MSc ;   Anne Mertens   ¹ , MS, PhD ;   Fuad El-Rassi   ¹⁴ , MD ;   Peter Lane   ¹ , MD ;   Bronwen E Shaw   ¹⁵ , MD, PhD ;   Lillian Meacham   ¹ , MD ;   David Archer   ¹ , PhD

¹ Aflac Cancer and Blood Disorders Center, Children's Healthcare of Atlanta, Emory University School of Medicine, Atlanta, GA, United States

² Pediatric Hematology/Oncology/Blood and Marrow Transplantation, Children's National Health System, Washington, DC, United States

³ Section of Pediatric Oncology and Blood and Marrow Transplant, Alberta Children's Hospital, University of Calgary, Calgary, AB, Canada

⁴ Bone Marrow Transplant / Stem Cell Transplant Program, Cancer and Hematology Center, Texas Children's Hospital, Baylor College of Medicine, Houston, TX, United States

⁵ Division of Pediatric Hematology/Oncology/Bone Marrow Transplantation, Washington University in St. Louis, St. Louis, MO, United States

⁶ Clinical Research Division, Fred Hutchinson Cancer Research Center, Seattle, WA, United States

⁷ Pediatric Transplant and Cellular Therapy, Duke University School of Medicine, Durham, NC, United States

⁸ Division of Pediatric Hematology Oncology/Bone Marrow Transplantation, Ann and Robert H Lurie Children's Hospital of Chicago, Chicago, IL, United States

⁹ Division of Pediatric Hematology/Oncology/BMT, Cook Children's Medical Center, Fortworth, TX, United States

¹⁰ Department of Medicine and Hematology, Lagos University Teaching Hospital, Lagos, Nigeria

¹¹ National Institutes of Health Clinical Center, National Heart, Lung, and Blood Institute, Bethesda, MD, United States

¹² Division of Pediatric Hematology/Oncology/BMT, Imperial College London Faculty of Medicine, St. Mary's Hospital, London, United Kingdom

¹³ Division of Pediatric Hematology Oncology, University of North Carolina, Chapel Hill, NC, United States

¹⁴ Department of Hematology, Emory University School of Medicine, Atlanta, GA, United States

¹⁵ Center for International Blood and Marrow Transplant Research (CIBMTR), Department of Medicine, Medical College of Wisconsin, Milwaukee, WI, United States