The Australian Genetic Heart Disease Registry: Protocol for a Data Linkage Study

Alexandra Butters   ^{1, 2, 3} , MPH ;   Bianca Blanch   ⁴ , PhD ;   Anna Kemp-Casey   ⁵ , PhD ;   Judy Do   ^{1, 2} , BPsych ;   Laura Yeates   ^{1, 2, 3, 4, 6} , Grad Dip (GenCouns), BSc ;   Felicity Leslie   ^{1, 2} , BAppSci ;   Christopher Semsarian   ^{3, 4, 6} , PhD ;   Lee Nedkoff   ^{7, 8} , PhD ;   Tom Briffa   ⁷ , PhD ;   Jodie Ingles   ^{1, 2, 6} , PhD ;   Joanna Sweeting   ^{1, 2} , PhD

¹ Clinical Genomics Laboratory, Centre for Population Genomics, Garvan Institute of Medical Research, Darlinghurst, Australia

² Clinical Genomics Laboratory, Centre for Population Genomics, Murdoch Children's Research Institute, Melbourne, Australia

³ Faculty of Medicine and Health, The University of Sydney, Sydney, Australia

⁴ Agnes Ginges Centre for Molecular Cardiology, Centenary Institute, The University of Sydney, Sydney, Australia

⁵ Clinical and Health Sciences, University of South Australia, Adelaide, Australia

⁶ Department of Cardiology, Royal Prince Alfred Hospital, Sydney, Australia

⁷ School of Population and Global Health, The University of Western Australia, Perth, Australia

⁸ Victor Change Cardiac Research Institute, Sydney, Australia