This paper is in the following e-collection/theme issue:

Methods and Feasibility Studies (483) Medicine 2.0: Social Media, Open, Participatory, Collaborative Medicine (1941) Recruitment of Research Participants (381) Mass Media/Social Media Communication and Campaigns (584) Information Retrieval (354) Cross-Sectional Studies in Public Health (447)

Published on in Vol 13 (2024)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/53646, first published .
Lack of Diversity in Research on Females with Ehlers-Danlos Syndromes: Recruitment Protocol for a Quantitative Online Survey

Lack of Diversity in Research on Females with Ehlers-Danlos Syndromes: Recruitment Protocol for a Quantitative Online Survey

Lack of Diversity in Research on Females with Ehlers-Danlos Syndromes: Recruitment Protocol for a Quantitative Online Survey

Authors of this article:

Jennifer E Glayzer1 Author Orcid Image ;   Bethany C Bray2 Author Orcid Image ;   William H Kobak3 Author Orcid Image ;   Alana D Steffen1 Author Orcid Image ;   Judith M Schlaeger1 Author Orcid Image
Article Authors Cited by (5) Tweetations (3) Metrics

Journals

  1. Bird L, Olaker V, Pope R. Features of Vulvodynia Associated With Ehlers-Danlos Syndrome. Journal of Lower Genital Tract Disease 2025;29(4):376 View
  2. Venkatraman A, Schenck A, Thibeault S. Voice Disorders in Ehlers–Danlos Syndrome. American Journal of Speech-Language Pathology 2025;34(5):2736 View
  3. Daylor V, Griggs M, Weintraub A, Byrd R, Petrucci T, Huff M, Byerly K, Fenner R, Severance S, Griggs C, Sharma A, Atwal P, Kautz S, Shapiro S, Youkhana K, Lavallee M, Wilkerson A, Nichols M, Snyder A, Eichinger J, Patel S, Maitland A, Gensemer C, Norris R. Defining the Chronic Complexities of hEDS and HSD: A Global Survey of Diagnostic Challenges, Life-Long Comorbidities, and Unmet Needs. Journal of Clinical Medicine 2025;14(16):5636 View
  4. Niedenfuehr J, Stevens D. Self-reported efficacy of pelvic floor physical therapy in endometriosis patients before and after surgery: A cross-sectional study. Journal of Endometriosis and Pelvic Pain Disorders 2026 View
  5. Anderson L. Health-Related Quality of Life in Midlife and Older Women With Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders. Nursing for Women's Health 2026 View