Development and Implementation of an Online Patient Education Program for Children and Adolescents With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Their Parents, Siblings, and School Personnel: Protocol for the Prospective BAYNET FOR ME/CFS Study

Franca Keicher   ¹ , MSc, Dr med ;   Julia Thomann   ² , Dr med ;   Jana Erlenwein   ² , MSc ;   Mara Schottdorf   ² , MSc ;   Nils Lennart Reiter   ³ , BSc ;   Nadine Patricia Scholz-Schwärzler   ⁴ , MSc, Bc OT (NL) ;   Barbara Vogel   ⁵ , Dr rer biol hum, MPH ;   Cordula Warlitz   ⁴ , Dr med ;   Silvia Stojanov   ⁴ , PD, Dr med ;   Silvia Augustin   ⁴ , Dr med ;   Lola Goldbrunner   ⁴ ;   Linda Schanz   ² ;   Veronika Dodel   ² ;   Charlotte Zipper   ² ;   Nicole Schiweck   ² ;   Robert Jaeschke   ⁶ , Dr. Sportwiss. ;   Milica Saramandic   ⁴ , Dr med ;   Karolina Wiejaczka   ¹ ;   Maria Eberhartinger   ⁴ , BSc ;   Kristina Dettmer   ⁷ ;   Daniel Bruno Ricardo Hattesohl   ⁸ ;   Stephanie Englbrecht   ⁷ , Dr med ;   Uta Behrends   ⁴ , Prof Dr Med ;   Juliane Spiegler   ² , Prof Dr Med

¹ Department of Child and Adolescent Psychiatry, Psychosomatics and Psychotherapy, University Hospital of Wuerzburg, Würzburg, Germany

² Department of Pediatrics, University Hospital of Wuerzburg, Würzburg, Germany

³ PhysioBib GbR, Berlin, Germany

⁴ MRI Chronic Fatigue Center for Young People, Center for Pediatric and Adolescent Medicine, Technical University of Munich, Munich, Germany

⁵ Department of Orthopedics and Sports Orthopedics, Physical Therapy, University Hospital rechts der Isar, Technical University of Munich, Munich, Germany

⁶ Rehabilitation Centre for Children With Respiratory Diseases, Fachkliniken Wangen, Wangen, Germany

⁷ Parent Initiative for Children and Adolescents with ME/CFS Munich e.V., Munich, Germany

⁸ German Association for ME/CFS e. V., Hamburg, Germany