Development of a Framework for Youth- and Family-Specific Engagement in Research: Proposal for a Scoping Review and Qualitative Descriptive Study

Sarah E P Munce   ^{1, 2, 3, 4} , MSc, PhD ;   Clementine Jarrett   ^{5, 6, 7} ;   Vjura Senthilnathan   ^{1, 2, 8} , BSc, MSc ;   Dorothy Luong   ^{1, 2, 9} , MSc ;   Brooke Allemang   ^{8, 10, 11} , RSW, MSW, PhD ;   Katherine Bailey   ¹² , BSc, MSc, MD ;   Elaine Biddiss   ^{1, 2, 3, 13} , MASc, PhD, PEng ;   Maria T Britto   ^{14, 15} , MPH, MD ;   Francine Buchanan   ^{4, 8, 10, 16} , MLIS, PhD ;   Christine Cassidy   ^{17, 18} , BSCN, PhD ;   Andrea Cross   ^{19, 20, 21} , MSc, PhD ;   Jessie Cunningham   ²² , MISt ;   Gina Dimitropoulos   ²³ , BSW, MSW, PhD ;   Scott E Hadland   ^{24, 25} , BS, MS, MPH, MD ;   Monika Kastner   ^{4, 26} , BSc, PhD ;   Tieghan Killackey   ^{27, 28} , BScN, MN, PhD ;   Kristina Kokorelias   ^{3, 29, 30} , MHSc, PhD ;   Colin Macarthur   ⁸ , BSc, MBChB, MSc, PhD ;   Samantha Micsinszki   ^{19, 20} , RN, PhD ;   Chavon Niles   ^{3, 31} , BEd, MA, PhD ;   F Virginia Wright   ^{1, 2, 31} , PhD ;   Alene Toulany   ^{4, 8, 10, 12, 32, 33} , MD, MSc

¹ Holland Bloorview Kids Rehabilitation Hospital, Toronto, ON, Canada

² Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, ON, Canada

³ Rehabilitation Sciences Institute, University of Toronto, Toronto, ON, Canada

⁴ Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, ON, Canada

⁵ The Canadian Coalition for Rights of Children, Toronto, ON, Canada

⁶ Institute of Interdisciplinary Studies, Carleton University, Ottawa, ON, Canada

⁷ Feminist Institute of Social Transformation, Carleton University, Ottawa, Canada

⁸ Child Health Evaluative Sciences, SickKids Research Institute, Toronto, ON, Canada

⁹ KITE, Toronto Rehabilitation Institute, University Health Network, Toronto, ON, Canada

¹⁰ The Hospital for Sick Children, Toronto, ON, Canada

¹¹ Factor-Inwentash Faculty of Social Work, University of Toronto, Toronto, ON, Canada

¹² Temerty Faculty of Medicine, University of Toronto, Toronto, ON, Canada

¹³ Institute of Biomedical Engineering, University of Toronto, Toronto, ON, Canada

¹⁴ James M Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, United States

¹⁵ Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, United States

¹⁶ SickKids Research Institute, Toronto, ON, Canada

¹⁷ School of Nursing, Dalhousie University, Halifax, NS, Canada

¹⁸ Strengthening Transitions in Care Lab, IWK Health, Halifax, NS, Canada

¹⁹ CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada

²⁰ Department of Pediatrics, McMaster University, Hamilton, ON, Canada

²¹ School of Rehabilitation Science, McMaster University, Hamilton, ON, Canada

²² Health Sciences Library, Hospital for Sick Children, Toronto, ON, Canada

²³ Faculty of Social Work, University of Calgary, Calgary, AB, Canada

²⁴ Division of Adolescent and Young Adult Medicine, Mass General for Children, Boston, MA, United States

²⁵ Department of Pediatrics, Harvard Medical School, Boston, MA, United States

²⁶ North York General Hospital, Toronto, ON, Canada

²⁷ Toronto General Hospital Research Institute, University Health Network, Toronto, ON, Canada

²⁸ Lawrence Bloomberg Faculty of Nursing, University of Toronto, Toronto, ON, Canada

²⁹ Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, ON, Canada

³⁰ Section of Geriatric Medicine, Department of Medicine, Sinai Health, Toronto, ON, Canada

³¹ Department of Physical Therapy, University of Toronto, Toronto, ON, Canada

³² Department of Pediatrics, University of Toronto, Toronto, ON, Canada

³³ ICES, Toronto, ON, Canada