Quality of Life of Patients With Multi-Organ Autoimmune Disease and Its Relationship to Patient-Centered Care: Protocol for a Longitudinal Cohort Study

Marianne Bayrhuber   ^{1 *} , Dr ;   Christian Schlett   ^{1 *} , Dr ;   Julia Slesaczeck   ² , MSc ;   Sabrina Herbst   ² , MA ;   Gabriele Mueller   ² , Diplom-Ingenieur ;   Alexandra Nieters   ³ , Prof Dr ;   Bodo Grimbacher   ^{3, 4, 5, 6, 7} , Prof Dr ;   Erik Farin-Glattacker   ¹ , Prof Dr

¹ Faculty of Medicine and Medical Center, Section of Health Care Research and Rehabilitation Research, Institute of Medical Biometry and Statistics, Albert-Ludwigs-University of Freiburg, Freiburg, Germany

² Center for Evidence-Based Healthcare, Faculty of Medicine and University Hospital Carl Gustav Carus, TUD Dresden University of Technology, Dresden, Germany

³ Institute for Immunodeficiency, Center for Chronic Immunodeficiency (CCI), Medical Center, Faculty of Medicine, Albert-Ludwigs-University of Freiburg, Freiburg, Germany

⁴ Clinic of Rheumatology and Clinical Immunology, Center for Chronic Immunodeficiency (CCI), Medical Center, Faculty of Medicine, Albert-Ludwigs-University of Freiburg, Freiburg, Germany

⁵ DZIF – German Center for Infection Research, Satellite Center Freiburg, Freiburg, Germany

⁶ RESIST – Cluster of Excellence 2155 to Hanover Medical School, Satellite Center Freiburg, Freiburg, Germany

⁷ CIBSS – Centre for Integrative Biological Signalling Studies, Albert-Ludwigs University Freiburg, Freiburg, Germany

*these authors contributed equally