This paper is in the following e-collection/theme issue:

Participatory Research Protocols and Proposals (202) Health Services Research (573) E-Health / Health Services Research and New Models of Care (768) Knowledge Translation and Implementation Science (551) Participatory Design and Participatory Research (443)

Published on in Vol 15 (2026)

This is a member publication of ZHAW Zurich University of Applied Sciences

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/82833, first published .
Developing, Implementing, and Evaluating a Care Management Model for Patients With Neuromuscular Diseases: Protocol for a Participatory Mixed Methods Study

Developing, Implementing, and Evaluating a Care Management Model for Patients With Neuromuscular Diseases: Protocol for a Participatory Mixed Methods Study

Developing, Implementing, and Evaluating a Care Management Model for Patients With Neuromuscular Diseases: Protocol for a Participatory Mixed Methods Study

Authors of this article:

Veronika Waldboth1 Author Orcid Image ;   Christina Schuler1 Author Orcid Image ;   Raffaella Willmann2 Author Orcid Image ;   Heidi Petry3 Author Orcid Image ;   Markus Weber4 Author Orcid Image ;   Barbara Grädel Messerli5 Author Orcid Image ;   Hannele Hediger1 Author Orcid Image ;   Iris Kramer1 Author Orcid Image ;   Gabriela Stettler-Nemecek1 Author Orcid Image ;   Martin Knoblauch6 Author Orcid Image ;   Georg Martin Stettner7 Author Orcid Image
Article Authors Cited by Tweetations Metrics

Veronika Waldboth   1 , PhD ;   Christina Schuler   1 , MSc ;   Raffaella Willmann   2 , PhD ;   Heidi Petry   3 , PhD ;   Markus Weber   4 , MD ;   Barbara Grädel Messerli   5 , MSc ;   Hannele Hediger   1 , MSc ;   Iris Kramer   1 , MSc ;   Gabriela Stettler-Nemecek   1 , MSc ;   Martin Knoblauch   6 , lic.oec ;   Georg Martin Stettner   7 , MD, PD

1 Department of Health Sciences, Institute of Nursing, ZHAW Zurich University of Applied Sciences, Winterthur, Switzerland

2 Swiss Foundation for Research on Muscle Diseases, Colombier, Switzerland

3 Centre for Clinical Nursing Science, University Hospital Zurich, Zurich, Switzerland

4 Neuromuscular Diseases Unit/ALS Clinic, Health Ostschweiz (HOCH), Cantonal Hospital St. Gallen, St. Gallen, Switzerland

5 Medical division for children and adolescents, Bern University Hospital, Bern, Switzerland

6 Swiss ALS Foundation, Winterthur, Switzerland

7 Neuromuscular Center Zurich and Department of Pediatric Neurology, University Children’s Hospital Zurich, Zurich, Switzerland

Corresponding Author:

  • Veronika Waldboth, PhD
  • Department of Health Sciences
  • Institute of Nursing
  • ZHAW Zurich University of Applied Sciences
  • Katharina Sulzer Platz 9
  • Winterthur 8401
  • Switzerland
  • Phone: 41 58 934 6499
  • Email: veronika.waldboth@zhaw.ch