This paper is in the following e-collection/theme issue:

Non-Randomized Study Protocols and Methods (Non-eHealth) (571)

Published on in Vol 2, No 1 (2013): Jan-Jun

The Natural History of Spina Bifida in Children Pilot Project: Research Protocol

The Natural History of Spina Bifida in Children Pilot Project: Research Protocol

The Natural History of Spina Bifida in Children Pilot Project: Research Protocol

Authors of this article:

Ann I. Alriksson-Schmidt1 ;   Judy K. Thibadeau2 ;   Mark E. Swanson2 ;   David Marcus3 ;   Kari L. Carris4 ;   Csaba Siffel2 ;   Elisabeth Ward5
Article Authors Cited by (10) Tweetations (2) Metrics

Journals

  1. Alriksson-Schmidt A, Arner M, Westbom L, Krumlinde-Sundholm L, Nordmark E, Rodby-Bousquet E, Hägglund G. A combined surveillance program and quality register improves management of childhood disability. Disability and Rehabilitation 2017;39(8):830 View
  2. Levin-Decanini T, Miller E, Houtrow A, Kreashko L, Cassidy B, Brei T, Castillo J. Implementation of intimate partner violence education for adolescents with spina bifida. Journal of Pediatric Rehabilitation Medicine 2019;12(4):339 View
  3. Thibadeau J, Reeder M, Andrews J, Ong K, Feldkamp M, Rice S, Alriksson-Schmidt A. Understanding the Natural Progression of Spina Bifida: Prospective Study. JMIR Research Protocols 2017;6(9):e180 View
  4. Alriksson-Schmidt A, Josenby A, Lindquist B, Westbom L, Castillo J. Pain and health status in adults with myelomeningocele living in Sweden. Journal of Pediatric Rehabilitation Medicine 2018;11(4):255 View
  5. Lee S, Shin H, Nam T, Park Y, Kim D, Kwon J. Growth profile assessment of young adults with tethered cord syndrome: a retrospective cohort analysis of Korean conscription data. Child's Nervous System 2021;37(6):1973 View
  6. Caceres A, Blount J, Messing-Jünger M, Chatterjee S, Fieggen G, Salomao J. The International Society for Pediatric Neurosurgery resolution on mandatory folic acid fortification of staple foods for prevention of spina bifida and anencephaly and associated disability and child mortality. Child's Nervous System 2021;37(6):1809 View
  7. Buckley M, Boland P, Gowran R. Understanding Parents’ Perspectives of Support Services for People Living with Spina Bifida and/or Hydrocephalus in Ireland: A Qualitative Exploration. Disabilities 2021;1(4):406 View
  8. Alriksson-Schmidt A, Ong K, Reeder M, Thibadeau J, Feldkamp M. Site, frequency, and duration of pain in young children with spina bifida. Journal of Pediatric Rehabilitation Medicine 2021;14(4):571 View
  9. Shin H, Jung S. Body Fat Distribution and Associated Risk of Cardiovascular Disease in Adults With Cerebral Palsy. Frontiers in Neurology 2021;12 View

Books/Policy Documents

  1. Elhagar A, Hashem Z. Congenital Spine Malformations. View