Using the Internet to Seek Information About Genetic and Rare Diseases: A Case Study Comparing Data From 2006 and 2011
Using the Internet to Seek Information About Genetic and Rare Diseases: A Case Study Comparing Data From 2006 and 2011
Tamandra Morgan
1
, ScM ;
Johanna Schmidt
2
, MPH ;
Christy Haakonsen
3
, ScM ;
Janine Lewis
1
, MS ;
Maria Della Rocca
1
, MS ;
Stephanie Morrison
1
, MPH ;
Barbara Biesecker
4
, MS, PhD ;
Kimberly A. Kaphingst
5
, ScD
1
ICF International, Rockville, MD, United States
2
Children's National Medical Center, Washington, DC, United States
3
The Harvey Institute for Human Genetics, Baltimore, MD, United States
4
National Human Genome Research Institute, Bethesda, MD, United States
5
Washington University School of Medicine, St Louis, MO, United States