The Development of Videoconference-Based Support for People Living With Rare Dementias and Their Carers: Protocol for a 3-Phase Support Group Evaluation

Claire Waddington   ¹ , BSc, MSc ;   Emma Harding   ¹ , BSc, PhD ;   Emilie V Brotherhood   ¹ , BSc, MSc ;   Ian Davies Abbott   ² , RMN, BA, MSc, PhD ;   Suzanne Barker   ¹ , MSc ;   Paul M Camic   ¹ , BA, MA, PhD ;   Victory Ezeofor   ³ , BTech, MSc, PhD ;   Hannah Gardner   ¹ , HND, DipHE ;   Adetola Grillo   ⁴ , BSc, MSc, PhD ;   Chris Hardy   ¹ , BSc, MSc, PhD ;   Zoe Hoare   ⁵ , BSc, PhD ;   Roberta McKee-Jackson   ¹ , BSc ;   Kirsten Moore   ⁶ , BA, PhD ;   Trish O’Hara   ¹ ;   Jennifer Roberts   ² , BA, MSc, PhD ;   Samuel Rossi-Harries   ¹ , BA, MSc ;   Aida Suarez-Gonzalez   ¹ , MSc, PhD ;   Mary Pat Sullivan   ⁴ , BSW, MSW, PhD ;   Rhiannon Tudor Edwards   ³ , BSc, MA, PhD ;   Millie Van Der Byl Williams   ¹ , BA, MA ;   Jill Walton   ¹ , BSc, MSc ;   Alicia Willoughby   ¹ , MA ;   Gill Windle   ² , BSc, MSc, PhD ;   Eira Winrow   ³ , MA ;   Olivia Wood   ¹ , BSc ;   Nikki Zimmermann   ¹ , BSc ;   Sebastian J Crutch   ¹ , BA, ClinPsy, PhD ;   Joshua Stott   ⁷ , BSc, PGDip, DClinPsy, PhD

¹ Dementia Research Centre, Institute of Neurology, University College London, London, United Kingdom

² Dementia Services Development Centre, Bangor University, Bangor, United Kingdom

³ Centre for Health Economics and Medicines Evaluation, Bangor University, Bangor, United Kingdom

⁴ School of Social Work, Faculty of Education and Professional Studies, Nipissing University, North Bay, ON, Canada

⁵ School of Health Sciences, Bangor University, Bangor, United Kingdom

⁶ Division of Psychiatry, University College London, London, United Kingdom

⁷ Psychology and Language Sciences, University College London, London, United Kingdom