This paper is in the following e-collection/theme issue:

RCTs - Protocols/Proposals (non-eHealth) (311) User Needs and Competencies (308) Supporting Home Care and Family Caregivers (193) Qualitative Methods (71) Quality Improvement (255) Health Care Quality and Health Services Research (274) Health Services in Resource-Poor Settings and LMICs (416)

Published on in Vol 13 (2024)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/53362, first published .
Needs and Experiences With Health Care Providers of Adult Rare Disease Patients and Caregivers of People With Rare Diseases: Protocol for a Qualitative Study

Needs and Experiences With Health Care Providers of Adult Rare Disease Patients and Caregivers of People With Rare Diseases: Protocol for a Qualitative Study

Needs and Experiences With Health Care Providers of Adult Rare Disease Patients and Caregivers of People With Rare Diseases: Protocol for a Qualitative Study

Authors of this article:

Tina Černe1 Author Orcid Image ;   Eva Turk2, 3 Author Orcid Image ;   Spela Mirosevic1 Author Orcid Image ;   Danica Rotar Pavlič1 Author Orcid Image
Article Authors Cited by Tweetations (5) Metrics

Tina Černe   1 , MSc ;   Eva Turk   2, 3 , MBA, PhD ;   Spela Mirosevic   1 , MSc, PhD ;   Danica Rotar Pavlič   1 , MD, PhD

1 Deparment of Family Medicine, Univeristy of Ljubljana, Ljubljana, Slovenia

2 Center for Digital Health and Social Innovation, Department of Health Sciences, Univerisity of St. Pölten, St. Pölten, Austria

3 Medical Faculty, University of Maribor, Maribor, Slovenia

Corresponding Author: