Improving Registration and Dataflows Between Pediatric Oncology Clinics and the Childhood Cancer Registry of Switzerland: Protocol for SwissPedCancer Quality Assurance Study

Yara Shoman   ^{1, 2} , PhD ;   Lorenz Leuenberger   ^{1, 3} , Dr med ;   Grit Sommer   ^{1, 2} , PD ;   Julia Anna Bielicki   ^{4, 5} , Prof Dr Med ;   Pierluigi Brazzola   ⁶ , Dr med ;   Sophia della Valle   ² , MMed ;   Manuel Diezi   ⁷ , Dr med ;   Daniel Drozdov   ⁸ , Dr med ;   Fabienne Gumy-Pause   ^{9, 10} , Dr med ;   Ana Guerreiro Stücklin   ¹¹ , Prof Dr Med ;   Ursula M Kuehnel   ² , MA ;   Katrin Scheinemann   ^{12, 13} , MSc, Prof Dr med ;   Christina Schindera   ^{1, 14} , PD Dr Med, PhD ;   Freimut Schilling   ¹⁵ , Dr med ;   Nicolas Waespe   ^{1, 10, 16} , PD Dr Med, PhD ;   Ben D Spycher   ^{1, 2} , Prof Dr ;   Luregn J Schlapbach   ^{17, 18} , Prof Dr Med ;   Claudia E Kuehni   ^{1, 2, 16 *} , Prof Dr Med ;   Fabiën N Belle   ^{1 *} , PhD ;   SwissPedHealth Consortium   ¹⁹

¹ Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland

² Childhood Cancer Registry of Switzerland (ChCR), Bern, Switzerland

³ Graduate School for Health Sciences, University of Bern, Bern, Switzerland

⁴ Department of Paediatric Infectious Diseases, University Children’s Hospital Basel, Basel, Switzerland

⁵ Centre for Neonatal and Paediatric Infection, St George's University, London, United Kingdom

⁶ Pediatric Institute of Italian Switzerland, Bellinzona, Bellinzona, Switzerland

⁷ Lausanne University Hospital (CHUV), University of Lausanne, Lausanne, Switzerland

⁸ Division of Pediatric Hematology Oncology, Children’s Hospital, Kantonsspital Aarau (KSA), Aarau, Switzerland

⁹ Division of Pediatric Oncology and Hematology, Department of Women, Child and Adolescent, Geneva University Hospitals (HUG), Geneva, Switzerland

¹⁰ CANSEARCH Research Platform for Pediatric Oncology and Hematology, Department of Pediatrics, Gynecology and Obstetrics, Faculty of Medicine, University of Geneva, Geneva, Switzerland

¹¹ Division of Oncology and Children's Research Center, University Children's Hospital of Zurich, Zurich, Switzerland

¹² Division of Hematology/Oncology, Children’s Hospital of Eastern Switzerland, St. Gallen, Switzerland

¹³ Faculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland

¹⁴ Depaertment of Pediatric Oncology/Hematology, University Children’s Hospital Basel, Basel, Switzerland

¹⁵ Children’s Hospital of Central Switzerland, Lucerne, Switzerland

¹⁶ Division of Pediatric Hematology and Oncology, Department of Pediatrics, Inselspital, Bern University Hospital, University of Bern, Bern, Switzerland

¹⁷ Division of Intensive Care Oncology and Neonatology, and Children's Research Center, University Children’s Hospital Zurich, University of Zurich, Zurich, Switzerland

¹⁸ Child Health Research Centre, The University of Queensland, Brisbane, Queensland, Australia

¹⁹ See Acknowledgments

*these authors contributed equally