This paper is in the following e-collection/theme issue:

RCTs - Protocols/Proposals (funded, already peer-reviewed, non-eHealth) (172) Consumer & Patient Education and Shared-Decision Making (680) Chronic Disease Self-Management in Childhood and Adolescence (140) Caregiving and Parenting for Chronic Pediatric Diseases (82) Supporting Home Care and Family Caregivers (191)

Published on in Vol 10, No 5 (2021): May

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/27650, first published .
Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial

Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial

Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial

Authors of this article:

Anna M Hood1 Author Orcid Image ;   Heather Strong2 Author Orcid Image ;   Cara Nwankwo3 Author Orcid Image ;   Yolanda Johnson2 Author Orcid Image ;   James Peugh2 Author Orcid Image ;   Constance A Mara2 Author Orcid Image ;   Lisa M Shook4, 5 Author Orcid Image ;   William B Brinkman4, 6 Author Orcid Image ;   Francis J Real4, 6 Author Orcid Image ;   Melissa D Klein4, 6 Author Orcid Image ;   Rogelle Hackworth7 Author Orcid Image ;   Sherif M Badawy8, 9 Author Orcid Image ;   Alexis A Thompson8, 9 Author Orcid Image ;   Jean L Raphael10 Author Orcid Image ;   Amber M Yates11 Author Orcid Image ;   Kim Smith-Whitley12, 13 Author Orcid Image ;   Allison A King14, 15 Author Orcid Image ;   Cecelia Calhoun15 Author Orcid Image ;   Susan E Creary16 Author Orcid Image ;   Connie M Piccone17 Author Orcid Image ;   Aimee K Hildenbrand18, 19 Author Orcid Image ;   Steven K Reader18, 19 Author Orcid Image ;   Lynne Neumayr20, 21, 22 Author Orcid Image ;   Emily R Meier23 Author Orcid Image ;   Amy E Sobota24 Author Orcid Image ;   Sohail Rana25 Author Orcid Image ;   Maria Britto4, 26, 27 Author Orcid Image ;   Kay L Saving28 Author Orcid Image ;   Marsha Treadwell29 Author Orcid Image ;   Charles T Quinn4, 30 Author Orcid Image ;   Russell E Ware4, 5 Author Orcid Image ;   Lori E Crosby2, 4, 27 Author Orcid Image
Article Authors Cited by (8) Tweetations (10) Metrics

Journals

  1. Strong H, Hood A, Johnson Y, Hackworth R, Reed-Shackelford M, Ramaswamy R, Varughese T, Quinn C, Crosby L. Using the consolidated framework for implementation research to identify recruitment barriers and targeted strategies for a shared decision-making randomized clinical trial in pediatric sickle cell disease. Clinical Trials 2023;20(3):211 View
  2. Barriteau C, Badawy S. Practical Guidance for the Use of Voxelotor in the Management of Sickle Cell Disease. Journal of Blood Medicine 2022;Volume 13:739 View
  3. Hood A, Booker S, Morais C, Goodin B, Letzen J, Campbell L, Merriwether E, Aroke E, Campbell C, Mathur V, Janevic M. Confronting Racism in All Forms of Pain Research: A Shared Commitment for Engagement, Diversity, and Dissemination. The Journal of Pain 2022;23(6):913 View
  4. Williford D, Sweenie R, Ramsey R, McGrady M, Crosby L, Modi A. Diversity, Equity, and Inclusion within Pediatric Adherence Science. Journal of Clinical Psychology in Medical Settings 2023;30(2):330 View
  5. Hood A, Crosby L, Stotesbury H, Kölbel M, Kirkham F. Considerations for Selecting Cognitive Endpoints and Psychological Patient-Reported Outcomes for Clinical Trials in Pediatric Patients With Sickle Cell Disease. Frontiers in Neurology 2022;13 View
  6. Real F, Hood A, Davis D, Cruse B, Klein M, Johnson Y, McTate E, Brinkman W, Hackworth R, Hackworth K, Quinn C, Crosby L. An Immersive Virtual Reality Curriculum for Pediatric Hematology Clinicians on Shared Decision-making for Hydroxyurea in Sickle Cell Anemia. Journal of Pediatric Hematology/Oncology 2022;44(3):e799 View
  7. Di Minno G, Spadarella G, Maldonato N, De Lucia N, Castaman G, De Cristofaro R, Santoro C, Peyvandi F, Borrelli A, Lupi A, Follino M, Guerrino G, Morisco F, Di Minno M. Awareness of individual goals, preferences, and priorities of persons with severe congenital haemophilia A for a tailored shared decision-making approach to liver-directed gene therapy. A practical guideline. Blood Reviews 2023;62:101118 View
  8. Aurora T, Bridges C, Porter A, Madni A. Pediatric sickle cell disease: A case for improved clinician‐family partnerships. Journal of Hospital Medicine 2024;19(2):146 View